Winter is hard for me because I have a rare disease that has no cure called Cold Agluttinin Disease. Basically because of too much IgM antibodies my blood thickens if subjected to any cold, Red Blood Cells live shortened lives, and overall I have to deal with an almost chronic state of mild Anemia that worsens with colder weather.
To avoid weakness and the need for any treatment that would involves compromising my immune system, or worse case transfusions of blood to live, I have to avoid the cold as much as possible, and understand that my blood thickens enough that blood does not circulate and that exposed skin turns blue and I have to watch out for frostbite. Even in the summer I can get a blue attack because of air conditioning or a drink of cold water.
Anyways all this is related to Cancer, and last year I got the second opinion to make sure that I didn't have Lymphoma. Somehow I remain a medical mystery because my Hematologists said that with my levels of high antibodies he would expect a very sick patient, and I do not have any underlying disease like HIV, or Hepatitis that would make my CAD a secondary disease. My CAD is "Idiopathic" meaning for no known underlying cause. The Center for Disease Control says that one in 80,000 people have CAD, so amung NYC's 8 million people perhaps there are about 100 people with my disease.
Anyways I have spent this winter in the gym in my building to strengthen my body, lower my blood pressure and lowered my resting pulse. Somehow I am a 56 year old man trapped in what looks like a 30 year old body, I have a 9 inch drop between my chest and waist, and overall I am built like a welterweight boxer. Sometime my pulse is in the low 40's and my blood pressure dips below 100/60.
I'm sure I will be in good shape to take advantage of the warm weather, and I have been planning on making the most of it. Somehow I am very-very lucky because I am able to still work and my health is stable. I'm just making the most of my situation, but what might be really hard is leaving NYC because it is my home.
Cal